Irish Lung Disease Patients Face Tough Choices Between Oxygen and Food

Thousands of patients in Ireland suffering from incurable lung disease are confronting a dire dilemma: they must choose between purchasing oxygen and buying groceries. This alarming situation was highlighted by the Irish Lung Fibrosis Association (ILFA) after a recent meeting with Health Minister Jennifer Carroll McNeil. Currently, around 5,000 individuals are diagnosed with this chronic illness, with an increasing annual rate of 1,000 new cases.

The ILFA is urging the government to provide financial assistance to lung patients, establish a new National Registry for Lung Fibrosis, and implement a comprehensive clinical programme. The disease, characterized by progressive lung scarring, primarily affects those over the age of 65, making it increasingly difficult for them to breathe. For many, access to oxygen is essential for survival.

In a statement, ILFA CEO Maureen O’Donnell emphasized the urgency of the situation, stating, “We are calling for an end to Lung Fibrosis patients being forced to make impossible choices. Patients shouldn’t have to choose between getting treatment and buying groceries.” O’Donnell highlighted the financial strain that leads many patients to ration their oxygen supply, exacerbated by high electricity costs.

The challenges extend beyond financial hardships. Patients like Sean O’Se from Kerry shared his experience of delayed diagnosis due to a lack of awareness surrounding the disease. “When my breathing difficulties started six years ago, I did not know the challenges that lay ahead. It took 18 months to be diagnosed,” he recounted. With specialist care limited to eight centres, most of which are located in Dublin, patients often face significant travel distances to receive necessary treatment, incurring additional costs.

The ILFA has called for affordable oxygen therapy solutions, including financial relief measures such as electricity subsidies for patients reliant on home oxygen concentrators. They are also advocating for increased investment in pulmonary rehabilitation and psychological support services, particularly in rural areas that are underserved.

September is designated as Lung Fibrosis Month, and the ILFA plans to launch a national awareness campaign under the slogan “Every Breath Matters.” The campaign will culminate in events at Leinster House and in Dublin on September 25, coinciding with World Lung Day.

Symptoms of lung fibrosis typically include shortness of breath, low energy, and a persistent dry cough. The condition hampers the ability of oxygen to enter the bloodstream, leading to significant health challenges and a life-limiting prognosis. While there is currently no cure for lung fibrosis, access to appropriate medications and care can help slow the disease’s progression.

The ILFA’s advocacy reflects a growing concern for the welfare of lung fibrosis patients, emphasizing the critical need for government intervention and support to alleviate their burdens.