Father Survives 8 Years After Terminal MND Diagnosis, Inspires Others

UPDATE: In a remarkable turn of events, Paul Jameson, a father-of-three diagnosed with motor neurone disease (MND) and initially given just six months to live, is thriving eight years later. The 65-year-old entrepreneur from Godalming, Surrey, is determined to break the taboo surrounding death and inspire others with his journey.

Diagnosed on June 12, 2017, with a form of MND called Progressive Bulbar Palsy (PBP), Paul faced life-altering challenges, including slurred speech and loss of mobility. Despite the grim prognosis, he has not only survived but has also accomplished an incredible 50 achievements from his bucket list, including climbing Mont Blanc and Mount Kilimanjaro.

Paul’s journey began with devastating news that left him in shock. “I immediately started crying,” he recalled. However, with the support of his family, especially his son, David Jameson, he transformed this setback into motivation. Paul’s first question upon learning of his diagnosis was, “How long do I have?” This propelled him to live life to the fullest, creating a bucket list that included adventurous challenges and travel.

Paul’s diagnosis has led to significant changes in his family dynamics. David expressed the emotional whirlwind they experienced, saying, “No family is perfect, but we were a very lucky family, and it turned everything upside down.” Together, they founded Aura in 2019, a funeral provider company aimed at helping people face death with “clarity, dignity, and control.” The platform offers direct cremations and funeral plans, addressing the often-awkward conversations surrounding end-of-life decisions.

Paul’s mission extends beyond his personal challenges. He stated, “I want my life celebrated, not my death mourned,” emphasizing the importance of joyful remembrance rather than sorrow. His unique vision includes a request for his ashes to be launched in a firework display, symbolizing his vibrant spirit.

Despite losing the ability to speak and walk, Paul remains positive and actively engaged in life. He sees a personal trainer twice a week and is preparing to tackle new challenges. In September, he plans to attempt breaking four wheelchair Guinness World Records at Dunsfold Aerodrome in aid of the MND Association, showcasing his relentless determination.

Reflecting on his journey, Paul shared, “Where there’s life, there’s hope. Never give up living … and keep smiling.” His story serves as an urgent reminder of resilience and the power of hope, inspiring countless others facing similar struggles.

As Paul continues to defy the odds, he is set to release his second book, further spreading his message of positivity and strength. His journey illustrates that even in the face of terminal illness, life can still be lived fully and meaningfully.

To learn more about Paul and Aura, visit: aura.life.