Charity Provides Financial Support and Guidance for Families Battling Childhood Cancer

A charity founded by parents of children with cancer is offering essential financial grants and expert advice to families grappling with the challenges of childhood cancer. Childhood Cancer Ireland aims to alleviate some of the burdens faced by families during difficult times, providing support that is deeply rooted in personal experience.

Laura Cullinan, the chief executive of the charity, has firsthand knowledge of these struggles. Her daughter was diagnosed with cancer at just 21 months old, and after a year of treatment, she faced a relapse. Reflecting on her journey, Cullinan stated, “A lot of it for us was trying to find your way, trying to find supports and services when the rugs are pulled out from under you overnight with no warning.”

Although her daughter is currently thriving and back at school, Cullinan acknowledges that the repercussions of such a diagnosis extend beyond the immediate treatment. “When the treatment finishes and the hair grows back is not actually when cancer finishes,” she explained, emphasizing the ongoing challenges families face even after treatment concludes.

The charity recognizes the significant financial strain placed on families, particularly as they navigate the complexities of medical care. “Overnight, the rug is pulled out from under you,” Cullinan remarked, highlighting the drastic change in financial circumstances when one parent often needs to stop working to care for a sick child.

In Ireland, an average of 375 children, teenagers, and young adults up to the age of 24 are diagnosed with cancer each year. To support families during these trying times, Childhood Cancer Ireland has introduced several grants. A new bereavement grant provides financial assistance to families who have lost a child to cancer, while a relapse grant supports those whose child’s cancer has returned.

Families can apply for these grants through discussions with medical social workers at hospitals, who facilitate the connection with the charity. Additionally, the charity offers consultations with professionals from the financial services firm LIA, who provide guidance on managing the financial implications of cancer treatment. “Parents can struggle with a range of things,” Cullinan noted, highlighting the various challenges families encounter.

The geographical realities of treatment also add to financial burdens, as many families must travel to Children’s Health Ireland (CHI) in Crumlin, Dublin, for specialized care. “If you’re a child living in Kerry, you’re coming to Crumlin for your treatment,” Cullinan explained. Although some support exists through regional hospitals, the primary care is concentrated in Dublin, leading to increased travel and accommodation costs for families.

Cullinan pointed out that parking fees, despite being subsidised, remain a “real hidden cost.” Furthermore, childcare expenses can escalate, especially for families with other children. “If you’re in the community and there’s a waiting list for community services, and you need to get your child seen, then you end up paying privately for it,” she added. This reality places additional strain on families already facing the emotional and physical toll of cancer treatment.

Childhood Cancer Ireland operates without government funding, relying solely on donations to support its initiatives. The charity’s commitment to helping families navigate these tough circumstances is a testament to the strength and resilience required when confronting childhood cancer.

As the organization continues to provide grants and resources, it aims to empower families, ensuring they do not have to face these challenges alone.