Tributes Flow for Martyn Butler, Co-Founder of Terrence Higgins Trust

Martyn Butler, the co-founder of the Terrence Higgins Trust, passed away on February 21, 2026, at the age of 71. His death has sparked an outpouring of tributes from communities and individuals who remember him as a passionate advocate for those living with HIV. Butler, alongside Rupert Whitaker, established the trust in 1982 following the death of Whitaker’s boyfriend, Terry Higgins, who was the first publicly named person in the UK to die from an AIDS-related illness.

A Legacy of Advocacy and Compassion

The Terrence Higgins Trust became Europe’s first organization dedicated to addressing the HIV epidemic. Its mission has been to humanize the crisis, provide support to those affected, and promote crucial prevention information. Butler’s dedication was evident from the start; he launched the first AIDS helpline, using his personal phone number to offer guidance and support to those in need.

Having spent nearly five decades with the trust, Butler was honored with an OBE from Queen Elizabeth II in 2022 for his remarkable contributions. That same year, he also received a Lifetime Achievement Award from Rainbow Honours. His commitment to the cause remained unwavering until his last days, as he was actively involved in various initiatives and events.

Community Reflections and Personal Tributes

In tributes shared on the Terrence Higgins Trust website, Butler is celebrated for his determination and tireless advocacy. The charity’s Chief Executive, Richard Agnell, stated, “The charity would not exist if it wasn’t for Martyn. When it came to the organization and people living with HIV, nothing was too much trouble for him.” Agnell highlighted Butler’s participation in early fundraising efforts and his support at community events such as Cardiff Pride.

“He was determined, spirited and never took no for an answer,” Agnell added. “He will be missed by the Terrence Higgins Trust family, his mother, siblings, and friends.”

The former captain of the British Lions, Gareth Thomas, also paid tribute, referring to Butler as “a trailblazer” in the fight for those living with HIV. “I will not forget his smile and we continue the fight in his memory,” Thomas remarked, underscoring Butler’s lasting influence on the community.

Butler’s brother, Guy Hewett, expressed heartbreak over the sudden loss but also pride in his brother’s accomplishments. “He saw it as a duty to inform the country, especially the gay community, about the limited information available on HIV and AIDS in the early 1980s,” Hewett noted. “Grief is the terrible price of love, but we know his legacy lives on.”

Martyn Butler’s impact on the fight against HIV/AIDS and his commitment to advocate for marginalized communities has left an indelible mark in the hearts of many. His legacy will continue to inspire future generations as they strive to build on the foundation he helped establish.